Fundacion Almar video explicativo de la Ataxia de Friedreich

Fundacion Almar video explicativo de la Ataxia de Friedreich

"Diagnosed with Friedreich’s Ataxia at an early age, overcoming the obstacles that I faced daily with a degenerative disease caused by a gene defect was almost impossible even though I tried desperately to cling to the Christian faith I had been immersed in since birth. It was a struggle to find answers from the one and only true God who I came to love and promised to serve. Joni has become an incredible source of inspiration for me." -Priscilla

We can smile at the storm

"Diagnosed with Friedreich’s Ataxia at an early age, overcoming the obstacles that I faced daily with a degenerative disease caused by a gene defect was almost impossible even though I tried desperately to cling to the Christian faith I had been immersed in since birth. It was a struggle to find answers from the one and only true God who I came to love and promised to serve. Joni has become an incredible source of inspiration for me." -Priscilla

Asociación contra la enfermedad Ataxia de Friedreich

Asociación contra la enfermedad Ataxia de Friedreich

Please vote for me! I've entered my painting "A Stroll Through the Tuileries in Winter" in a contest for artists with a rare disease. My disease is Friedreich's Ataxia. One winner is chosen by popular vote. Please vote a lot and share with your friends so I can win a prize! Also please visit CureFA.org for more information on my rare disease to raise awareness for research for a cure. THANK YOU!!!

Please vote for me! I've entered my painting "A Stroll Through the Tuileries in Winter" in a contest for artists with a rare disease. My disease is Friedreich's Ataxia. One winner is chosen by popular vote. Please vote a lot and share with your friends so I can win a prize! Also please visit CureFA.org for more information on my rare disease to raise awareness for research for a cure. THANK YOU!!!

La ataxia de friedreich es una alteración hereditaria que se produce por la degeneración del tejido nervioso debido a un daño progresivo del mismo. Los pacientes que padecen este trastornos presentan los síntomas a edades muy tempranas. (pérdida del equilibrio, debilidad muscular, dificultad en la articulación de las palabras, sordera...) Referencia: Ortiz Vásquez, S. D., & Rojas Mita, C. A. (2014). Ataxia de Friedreich. Revista de Actualización Clínica Investiga, 45, 2373.

La ataxia de friedreich es una alteración hereditaria que se produce por la degeneración del tejido nervioso debido a un daño progresivo del mismo. Los pacientes que padecen este trastornos presentan los síntomas a edades muy tempranas. (pérdida del equilibrio, debilidad muscular, dificultad en la articulación de las palabras, sordera...) Referencia: Ortiz Vásquez, S. D., & Rojas Mita, C. A. (2014). Ataxia de Friedreich. Revista de Actualización Clínica Investiga, 45, 2373.

Ataxia Friedreich Ataxia I'm not drunk I have Ataxia

Ataxia, Friedreich Ataxia, I'm not drunk, I have Ataxia, Awareness Cuff, Medical Alert symbol, Need A Cure, Gift for Her, Gift for Him

Ataxia Friedreich Ataxia I'm not drunk I have Ataxia

awareness for my cousin Stacey  Friedreich's Ataxia

awareness for my cousin Stacey Friedreich's Ataxia

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